This woman helped a total stranger through a seizure and shared the story on Twitter
Meet Erynn Brook.
She’s a writer who lives in Toronto with her husband and their two cats. She’s racked up a massive fan base on Twitter, where more than 34,000 people follow her. Brook runs a blog where she normally writes about feminism and culture. She seems to have a firm grasp on those topics — but she recently found herself in a situation that was a little outside of her comfort zone.
Hi! My name is Erynn, I’m Canadian. I’m married to @SaroMasbo, we play in a cover band together @mollyschamberTO and have two cats. I have ADHD and I talk about it a lot. I teach singing. I’m also back in school for New Media, a weird combo of art and tech that’s hard to explain.
— Erynn Brook (@ErynnBrook) May 19, 2018
Just An Ordinary Day
On April 3, 2019, Brook was riding the subway home after work, like millions of people do every day, when the train reached her stop. This was at about 10 p.m., according to the lengthy Twitter thread Brook wrote about this memorable night the next day. She said that as she was getting ready to stand for her coming stop, another passenger approached her and started talking.
I was on my way home after work. It’s about 10pm, and the subway is pulling up to my stop. I’ve been stressed about my own stuff for days now and I’m in my little bubble and just as I stand up the girl across from me starts talking.
— Erynn Brook (@ErynnBrook) April 4, 2019
Zoning Out On Her Commute Home
Like many of us after a day of work, Brook said she was in her own bubble on the mostly empty subway car and was listening to something in her earbuds, which she removed when the passenger approached her. It was a young woman whose lips were barely moving when she asked Brook, “Are you getting off soon?” Brook said she was before she noticed a laminated piece of paper the woman was holding toward her.
She’d been looking at me and I hadn’t really noticed. Her lips were barely moving, but I took out one earbud and said “pardon?” And she said “are you getting off soon?” And I said yes.
The train was mostly empty. But then I noticed she was holding a laminated sheet of paper out.
— Erynn Brook (@ErynnBrook) April 4, 2019
A Stranger’s Request
It turned out this sheet was very important to this woman’s everyday life. At the top, it read, “My seizure plan.” When Brook read this, she looked at the woman, a complete stranger only moments earlier, and asked, “Are you having a seizure now?” The woman said, “No, but I’m about to.” She then asked Brook if she’d sit with her until her they reached her stop.
At the top it said “my seizure plan”. I blinked at it then looked up at her. “Are you having a seizure now?” I asked.
“No, but I’m about to.” She looked down at the monitor on her finger. “Can you sit with me until your stop?” She asked.
— Erynn Brook (@ErynnBrook) April 4, 2019
Waiting For The Seizure To Hit
As they both waited for the seizure that was about to come, the woman, who Brook never named in her story, said she was three stops away. Despite being on the verge of a medical episode that would frighten many of us, the woman seemed to be more worried about inconveniencing Brook than about her own safety. Brook asked her what she would do if she got off the train before her, to which the woman said she’d “ask someone else,” pointing out another woman on the train who looked “nice.” But they didn’t have time to talk more right then.
She mentioned her stop was 3 stops away. I asked if she would like me to ride with her to her stop. She said she didn’t want to bother me. I asked what she would do when I got off, she kinda shrugged and said “ask someone else. Maybe her? She looks nice. Can you ask her for me?”
— Erynn Brook (@ErynnBrook) April 4, 2019
Staying The Course
Just then, the woman went into a seizure as Brook sat next to her. What the writer said stuck out most in her mind about the whole incident was how prepared and composed the woman was. She’d already moved her purse out of the way in preparation of the coming seizure and had folded her scarf over in a way that it would cushion her head as her body went through it. As the woman had her seizure, Brook read over the laminated sheet and learned that this person she’d just met was only 18 years old.
Then she seized. She had already moved her purse out of the way and folded her scarf in a place to catch her head as she slumped over. I sat next to her and read her seizure plan.
She’s 18.
I check my phone and start timing her seizure. I sit down. My stop comes and goes.
— Erynn Brook (@ErynnBrook) April 4, 2019
A 3-Minute Seizure
The seizure lasted for three whole minutes, as Brook was timing it on her phone. During that time, her own stop came and went, with Brook deciding she was going to ride this scary moment out with her new acquaintance and stay with her until she got home safely. The laminated “seizure plan,” which Brook described as an “anchor,” was filled with information about how long the woman’s seizures usually last, what to do for her and what to avoid doing for her when she was having one.
This seizure plan paper is like an anchor. It says what to do, what not to do, how long seizures might last, what medication she takes if they last too long, what steps to take if she becomes non-responsive. She comes out after 3 minutes.
— Erynn Brook (@ErynnBrook) April 4, 2019
Another Seizure Hits
When the woman came out of the seizure, Brook told her she was going to help her get home. She comforts her by saying that she’ll stick with her even if they miss the woman’s stop and have to loop around again to make it back. The woman thanked her and they made small talk. The woman was wearing a monitoring device on her finger and when Brook was asking how it worked, she started having another seizure.
She mentions that she needs to get a prescription refill. I say prescription refills are so annoying. She nods a bit, tells me a little bit about how the monitor on her finger works, and seizes again. I go back to reading the seizure plan. I’ve already read it but it’s an anchor.
— Erynn Brook (@ErynnBrook) April 4, 2019
Life With Daily Seizures
As the woman again was having a seizure, Brook said she sat next to her and read the sheet she’d given her at the beginning. She learned the woman typically has anywhere from one to four seizures every day and that each episode can last for anywhere from 10 minutes to an hour. That moment gave Brook, a person who has written about her own bouts with attention deficit hyperactivity disorder, or ADHD, a serious pause. She realized this teenager is rendered completely vulnerable multiple times every day with little warning ahead of time.
It says she gets these seizures 1-4 times a day, and each episode lasts 10-60mins.
Just think about that for a second. Think about being randomly completely vulnerable multiple times a day, and this is just… every day.
— Erynn Brook (@ErynnBrook) April 4, 2019
Keeping This ‘Stranger’ Safe
After the woman came out of this seizure, the train reached her stop. Brook asked if she wanted to try to get off the train or stay seated, to which the woman said, “I’m just so tired. I want to go home.” Brook helped her get off the train and the two of them sat down at the station before going any farther. The woman warned her new friend, “If it gets real bad, I may have to lie down on the floor.” Then, while seated with her scarf again folded behind her head, she went into another seizure as Brook stood and tried to make sure she didn’t fall.
She places her folded scarf on the back of the chair and positions herself just so. She tells me “if it gets real bad I may have to lie down on the floor.” And seizes again. I put my stuff down and stand so I can catch her if she slips off the chair.
— Erynn Brook (@ErynnBrook) April 4, 2019
Getting Her Home Safely
Determined not to leave this 18-year-old woman all alone on a subway platform in the dark of night, Brook again assured the woman she’d help her get home. The woman was once again worried about further inconveniencing Brook, but told her she lived just outside the subway station, which meant they simply had to climb some stairs and they were close. As they walked up the stairs together, the woman told Brook she’d had two of these long episodes the previous day, while, thankfully, this was only her first of today.
She just needs to make it up the stairs. She says her condo is right outside the exit. Offer to walk her up the stairs, at least. She asks if I’m sure and says again that she doesn’t want to bother me. We go slow and chat. This is her first seizure today, but yesterday she had 2.
— Erynn Brook (@ErynnBrook) April 4, 2019
Lights And Loud Noises Can Trigger Seizures
The slow walk up the stairs was a little tense, as the women watched the seizure monitor while climbing up toward the exit. Apparently, loud noises are a common trigger for the woman’s seizures, so she was forced to cover her ears as a train passed. The fluorescent lights at the subway platform could also trigger a seizure, the woman warned, but they eventually made it up the stairs and onto the street where she lived.
A few times she mentions how tired she is, and how close to home she is. Going up these stairs we keep an eye on her monitor. A train goes by and she covers her ears. Loud noises are a trigger for her. I ask if fluorescent lights are too, she nods. We make it out of the station.
— Erynn Brook (@ErynnBrook) April 4, 2019
Arriving Home Safely
From there, Brook walked this woman, whom she’d never met until just minutes earlier, to the building where she lived. She held the door for her and the woman thanked her for being with her and helping her make it home. The pair of women waved goodbye to each other and Brook watched through a window as she slowly walked to the elevator. She noticed the scarf, which had been so important to the woman’s safety during that scary incident, was now being worn like it was always meant to be.
I walk her to her building door and open it for her. She says “thank you for staying with me and getting me home safe.” I say “of course”, and we wave goodbye. Her scarf is draped around her shoulders now. She waved through the lobby window as she walks, slowly, to the elevator.
— Erynn Brook (@ErynnBrook) April 4, 2019
How Does This Young Woman Do It Alone?
Brook said as she thought later about this harrowing commute, she kept going back to the woman’s scarf.
“That’s the image I see,” Brook wrote in her Twitter thread. “How it was pre-folded before she even asked for help.” The writer said she was stunned by how this young woman didn’t really need any help at all and that she felt she didn’t actually help her much. “My job was to make sure that no one interrupted her getting to her door,” Brook wrote of her role that night.
She was fully prepared to go it alone. I didn’t help her, not really. My job was to make sure that no one interrupted her getting to her door. She was just trying to get home.
— Erynn Brook (@ErynnBrook) April 4, 2019
Why She Didn’t Call 911
Brook wrote about how she initially thought about calling 911 when the woman first went into a seizure but realized later that it would’ve only caused her more trouble.
“This girl who’s just trying to go home because this is her daily life, would’ve been burdened with loud noises and fluorescent lights and maybe an ambulance trip further from her destination,” Brook wrote. She said she would’ve likely called for emergency services if the woman hadn’t given her the laminated sheet before it all happened.
And this girl who’s just trying to go home because this is her daily life, would’ve been burdened with loud noises and fluorescent lights and maybe an ambulance trip further from her destination and a hospital bill and who knows what else, when she just needed to go home.
— Erynn Brook (@ErynnBrook) April 4, 2019
Considering The Possible Dangers This Young Woman Faces
Injecting some much-needed humor into what was an intense story to read on social media, Brook revealed a fact about that woman’s life that really puts her battle in perspective.
“This girl has seizures more reliably than I eat breakfast,” she wrote. “And she’s just out there living her life as best as she can.” She said it really bothered her how vulnerable this woman is left to the harsh world around her every single day, despite clearly always being well prepared.
This girl has seizures more reliably than I eat breakfast.
And she’s just out there living her life as best she can.
I’d be lying if I said I didn’t think about all the ways she was vulnerable, in public, alone, at night, all the dangers we associate with those things.
— Erynn Brook (@ErynnBrook) April 4, 2019
‘We Built A World For Convenience, Not Community’
As Brook further reflected on her night with this tough woman, she realized how sad it was that she seemed more worried about inconveniencing another passenger on the train than about her own safety. And how the world around us, while full of tools that make life more convenient, does not make for a tight sense of community. “We built a world where I could hit an emergency alarm button and walk off at my stop, feeling like I just saved this girl’s life, who didn’t need saving, without losing a minute of my day, if I wanted to,” Brook wrote in one of the thread’s most-liked posts.
We built a world where I could hit an emergency alarm button and walk off at my stop, feeling like I just saved this girl’s life, who didn’t need saving, without losing a minute of my day, if I wanted to.
We built a world for convenience, not community.
— Erynn Brook (@ErynnBrook) April 4, 2019
‘Build Something Better, Folks’
Brook went on to write that she finds it sad that people don’t want to help others if it gets in the way of their lives too much. She said if she had sat with the woman until her own stop before leaving the train, as the woman had initially asked, Brook would have been doing “the bare minimum,” which she said was “not good enough.” She urged her readers to “[b]uild a better world.”
Accommodation is the bare minimum. If I sat with her until my stop and then left, that’s what accommodation looks like.
It’s not good enough. Not for me, not for her, not for community and not for our world.
Build something better, folks. Build a better world. 💜
— Erynn Brook (@ErynnBrook) April 4, 2019
Shining A Light On Life With A Disability
The writer clarified that she didn’t write the thread to make herself sound like a good person or to simply point out how brave the woman she’d helped was. She said the lessons to be taken from her story are a bit deeper.
“It’s a story about human needs, through the lens of disability,” Brook wrote. “And how accessibility is not the same as acceptance or community care.”
It’s not a story about me being a good person. It’s not a story about how brave she is (though she clearly is), it’s a story about human needs, through the lens of disability, and how accessibility is not the same as acceptance or community care.
— Erynn Brook (@ErynnBrook) April 4, 2019
The Story Went Viral
Clearly this story hit people hard. The entire thread, which Brook continued to add to for more than a week, went viral. It’s been retweeted more than 23,000 times and the initial tweet that started it has been liked more than 61,000 times, with each individual tweet in the thread also getting about 6,000 likes each. Brook wrote more about that night on her blog in a post titled, “The Girl on the Train.” She said she hasn’t been contacted by the woman since the story went viral. In the end, she urged readers to “listen to disabled folks and do better.”
To answer your questions:
– No, I have not been contacted by her.
– No, I will not reveal more details about her.
– No, I don’t know about her getting a service dog.
– No, I don’t have her contact info.
– Just listen to disabled folks and do better. I have nothing else to add. 💜— Erynn Brook (@ErynnBrook) April 12, 2019